[OWW-SC] Fwd: [Oww-Feedback] Feedback Message (from Dr Alejo Corrales)
Tom Knight
tk at csail.mit.edu
Fri Jan 18 19:22:29 EST 2008
Apparently we need a statement similar to this one in the Pubmed FAQ:
http://www.ncbi.nlm.nih.gov/entrez/query/static/faq.html
On Jan 18, 2008, at 6:46 PM, Bill F wrote:
> We have our first feedback message. I can't figure out what to do with
> it so you folks can decide.
>
> I added links and icons for feedback and donate to the navigator menu.
> Both links are now active.
>
> I'll add a way to edit the message for Feedback when I have a chance.
>
> Thanks.
>
> Bill
>
>
> ---------- Forwarded message ----------
> From: OpenWetWare Feedback Form on OpenWetWare <
> feedback at openwetware.org>
> Date: Jan 18, 2008 4:44 PM
> Subject: [Oww-Feedback] Feedback Message (from Dr Alejo Corrales)
> To: Oww-Feedback <feedback at openwetware.org >
>
>
> Dear Dr Berglund: My name is Dr. Alejo Corrales from Argentina. The
> reason of this email , is because I would like know about new myotonic
> dystrophies (Steinert disease) therapies . My sister in law is
> affected , She had a baby who died 27 days after she birth . at this
> moment we realized that my sister in law family was carrier of the
> mutation , she has several relatives whose died as cause of this
> disease. My sister in law father is 72 years old he is carrier , he
> is affected , he is still alive but he shows several signs of the
> sateinet disease . Currently, my sister in law has same symtoms of the
> disease sach as myotonia. hypersomnia , Bronchitis among others. we
> are looking for new strategies o experimental treatments for this
> disease. I will apretiate if you can colaborate with same information
> we are able to go overseas if it is necesary.
>
> Best regards
>
> Dr. Alejo Corrales
> Ecuador 1334 3A
> Capital Federal
> Buenos Aires
> Argentina
> CP1425
> 1550985600
> _______________________________________________
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> Oww-Feedback at mit.edu
> http://mailman.mit.edu/mailman/listinfo/oww-feedback
>
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