[OWW-SC] Fwd: [Oww-Feedback] Feedback Message (from Dr Alejo Corrales)

Tom Knight tk at csail.mit.edu
Fri Jan 18 19:22:29 EST 2008


Apparently we need a statement similar to this one in the Pubmed FAQ:
http://www.ncbi.nlm.nih.gov/entrez/query/static/faq.html


On Jan 18, 2008, at 6:46 PM, Bill F wrote:

> We have our first feedback message. I can't figure out what to do with 
> it so you folks can decide.
>
> I added links and icons for feedback and donate to the navigator menu. 
> Both links are now active.
>
> I'll add a way to edit the message for Feedback when I have a chance.
>
> Thanks.
>
> Bill
>
>
> ---------- Forwarded message ----------
> From: OpenWetWare Feedback Form on OpenWetWare < 
> feedback at openwetware.org>
> Date: Jan 18, 2008 4:44 PM
> Subject: [Oww-Feedback] Feedback Message (from Dr Alejo Corrales)
> To: Oww-Feedback <feedback at openwetware.org >
>
>
> Dear Dr Berglund: My name is Dr. Alejo Corrales from Argentina. The 
> reason of this email , is because I would like know about new myotonic 
> dystrophies (Steinert disease) therapies  . My sister in law is 
> affected , She had a baby who died 27 days after she birth . at this 
> moment we realized that my sister in law family was carrier of the 
> mutation , she has several relatives whose died as cause of this 
> disease. My sister in law father   is 72 years old he is carrier , he 
> is affected  , he is still alive but he shows several signs of the 
> sateinet disease . Currently, my sister in law has same symtoms of the 
> disease sach as myotonia. hypersomnia , Bronchitis among others. we 
> are looking for new strategies o experimental treatments for this 
> disease. I will apretiate if you can colaborate with same information 
> we are able to go overseas if it is necesary.
>
> Best regards
>
> Dr. Alejo Corrales
> Ecuador 1334 3A
> Capital Federal
> Buenos Aires
> Argentina
> CP1425
> 1550985600
> _______________________________________________
> Oww-Feedback mailing list
> Oww-Feedback at mit.edu
> http://mailman.mit.edu/mailman/listinfo/oww-feedback
>
> _______________________________________________
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> sc at openwetware.org
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